Sunday, 18 November 2018

Diagnosis: butterflies in tummy area

So, as I am sure is the case for many of my cancer contemporaries, an annual appointment with the oncologist can be an anxiety inducing experience. In my case, even though I have received lots of good news recently, I still can't quite shake off the feeling that the butterflies in my stomach might burst out and land on the oncology Professor's forehead.

My usual modus operandi is to measure the feeling in the room (look for clues e.g. is he smiling? Are the nurses looking at me sympathetically? Is his handshake warm and welcoming?) before sitting down with my entourage (my dream team, wonderful Dad and amazing husband). If all the signs are good and his opening sentence is a positive one, then I am so giddy with relief that I essentially zone out for the remainder of the appointment.

I mitigate this problem by asking my Dad and Dean to make notes so that I can absorb the news when I'm back home.

Incredibly, despite the enormous pressure on the NHS, my oncologist always takes time to write a summary letter of what was discussed. This then gives me the chance to Google any complex terminology and disseminate the information to friends and family (and for this blog obvs.)

So, this one included my initial diagnosis:
"Triple negative ductal carcinoma left breast" is translated by me as "super aggressive cancer that cannot be treated by hormone therapies".

And my secondary diagnosis:
"Metastatic poorly differentiated carcinoma to the brain, had left craniotomy followed by whole brain radiotherapy" translated by me (I can't blame Google) as "OK...this is not looking good."

But that was then and this is now. I home in on the key phrases of the letter: 

"CT and MRI scans of the head showed stable appearance and no new metastases...This is TREMENDOUS news!"

"It is looking OPTIMISTIC that this will have been a solitary metastasis."

"She is doing very well from a point of view of the breast cancer generally. Clinically there is no sign of any recurrence."

And...drum roll..."We are now optimistic of the chances of a CURE!!!!!" *Words: oncology Professor. Punctuation and capitalisation: Author's own.

So, again, it's an amazing miracle at God's hand. According to a butterfly conservation site, butterflies are considered to represent "freedom, beauty and peace". Exactly my aims for the future.

Amanda

Imagine my embarrassment when these flew out



3 comments:

  1. This is great news Amanda. Thankyou for sharing this. Lots of love Clarice x

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  2. Thank you Clarice. Still singing ‘Don’t know how I made it here, know it’s by the Grace of God’ every morning.

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