The event was designed for people living with brain tumours predominantly and I received my invitation as I'm in the unenviable position of having cancer as well as a tumour. Although it sounds like heavy stuff it was actually an unexpected treat.
There were Consultant Neuro Surgeons, Clinical Nurse Specialists, Consultant Oncologists and even Neuro Psychologists all sharing their knowledge. There was a discussion panel, presentations and lots of support organisations offering everything from complementary therapy through to specially trained store staff from Boots The Chemist.
Here's what I retained from the event:
- There are specialists in conducting brain surgery (a craniotomy) when you are awake! Sounds scary but is apparently the best way to test your responses in certain situations where this is needed.
- Boots have a national network of Beauty Advisors to help people with life limiting diseases like Cancer to feel better about how they look and feel. Even with my chimp hair.
- Complementary therapies can be used to help tackle the physical and emotional aspects of brain tumours. This can be anything from reflexology to massage.
- Those with serious illnesses can have their eggs frozen to help them with loss of fertility further down the line (much further in fact as they can last up to 40 years)!
- Finally, and most importantly, there was an over-riding message from all the speakers and exhibitors that even people with life threatening diseases can access the right sort of help and live a life that is fulfilling, even trying something new so you're not judging yourself on your previous performances.
Thanks to all who took part.
Well, not literally obviously...