Waiting....

Hi guys.

Sorry it's been quiet blog-wise over the past week or so. Amanda hasn't really got much energy for anything right now.

I'm also short-cutting the process somewhat by copying & pasting my Facebook statuses below. The main thing of note is that we have an appointment with Amanda's neurologist this coming Wednesday (9th September) to discuss treatment options for Amanda seeing as Amanda's cancer in her brain has returned.

5th September
Hi all, just to let you know what's been going on over the last few days.
Amanda has been pretty tired all week as the effects from the radiotherapy (which ended 6 weeks ago)are still live inside her head, despite the fact that the cancer has returned. We had 2 really rough nights this week, one where she was awake all night (you know when people say "all night" and only mean half of it? This was ALL night...) with piercing pains in both knees, and a less dramatic but painful night with ankle pains, both eased off with trusty Tramadol, one of the best pain relievers there is out there. We're just keeping an eye on this as one of the side effects of her current medication is DVT...)
She's had her best day of the week today so far and if she's well enough Sunday morning, I'll drive her to her favourite church, as she's expressed a wish to attend before the next part of our adventure.
Regarding the 'next part of our adventure', we have an appointment with the neurologist this coming Wednesday at which stage we'll find out far more on our next course of action and possible dates for the next surgery.
There now follows a cartoon with absolutely nothing to do with the above information.

**Update** Rough night frown emoticon Pain now gone from the knees down to the feet from the ankles but she's awake, and off to church with her dad.

7th September
Well Amanda got to church with her dad yesterday. That's the good news....
However, she was sick on the journey back which put a dampener on the day and we also had to have the Emergency Doctor at nearly 3am this morning because, for the 4th night in a row, Amanda was suffering from severe pains, this time in her feet and shins which our existing medication wasn't able to deal with. She's now on a course of Naproxen anti-inflammatories. Hospital have advised we get some further blood tests to see what's causing this (Amanda doesn't want to do this but as we'll be at the hospital for our nureological appointment this Wednesday, we'll get this done then. 

These night time episodes have been pretty exhausting. Think of a TV programme called "World's Best Trombone Player*" or something similar and watch it for 7 times on the bounce. It's even worse than that. Hoping that by giving Amanda 2 of these tablets before she goes to bed tonight will prevent a 5th night of misery and trombone-related analogies.


*Sorry if you play the trombone. No offence intended.

You're welcome to follow my Facebook profile for updates https://www.facebook.com/dean.bromley

Thanks all.